Lucy’s Genetic Journey: My Amazing Parkinson’s Story

Lucy’s Genetic Journey: My Amazing Parkinson’s Story

From 2 Parkies in a Pod: a Parkinson's Podcast by Dave Clark & Kuhan

November 15, 2025 · 1h 41m · Season 1 · Episode 54

About this episode

Lucy shares her extraordinary journey with genetic Parkinson's disease, revealing life-changing insights from her DNA test.

In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey. Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA test to explore her family roots soon led to life-changing revelations — uncovering far more than she ever expected. Before releasing this episode, we sought advice from Lucy’s counsellor, and we’ve taken every step to protect the privacy of everyone involved in this remarkable story. If you’ve been affected by the topics discussed, or want to learn more about genetic Parkinson’s, you can contact the Parkinson’s UK Helpline for confidential advice and support: 📞 0808 800 0303 📧 hello@parkinsons.org.uk Donor Conceived Support https://donorconceiveduk.org.uk (peer led support) https://www.uhliverpool.nhs.uk/services/service-finder/donor-conceived-register (national register) EJS ACT PD Get Involved https://www.ejsactpd.com/ Watch 2 Parkies at Par-Con https://youtu.be/H7IFQfcp2os Neuro Heroes https://www.neuroheroes.co.uk/ Parkinson’s Europe Work Survey…

People in this episode

Hosts: Dave Clark, Kuhan

Guest: Lucy

Topics covered

  • genetic Parkinson's
  • personal journey
  • health
  • counseling
  • DNA testing

Keywords

  • Parkinson's
  • genetic testing
  • LRRK2
  • Ancestry DNA
  • health support

Mentioned in this episode

Organizations: Parkinson’s UK, Donor Conceived Support, EJS ACT PD, Neuro Heroes, Parkinson’s Europe, Neuralink

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