A typical Friday around our Homestead plus a lot going on
About this episode
The episode discusses a challenging Friday for the family, including a medical diagnosis for their son and their recent move to Tennessee.
Hi everyone. Wow, what a Friday. We had a lot going on our son Nathaniel. We thought he had RETT, syndrome. No he has Hunter syndrome which is just as bad, as RETT. Unfortunately it is Progressive and also pretty bad but it was confusing because we were told he had our ETT. He does not also, we moved to Tennessee. Back to Tennessee we went. It was hard to make that decision, but we had two for our family. I wish I’d talked about it, but I didn’t anyway I love you guys.
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