They Said Everything Was Fine… Until She Gave Birth” Rare Diagnosis & Motherhood

They Said Everything Was Fine… Until She Gave Birth” Rare Diagnosis & Motherhood

From Becoming Lucy by Lucy Hodgkinson

April 7, 2026 · 1h 0m · Season 3 · Episode 3

About this episode

Megan shares her unexpected journey into motherhood, navigating the challenges of raising a child with a rare condition while finding strength and community support.

In this episode of Becoming Lucy , Lucy and Hana sit down with Megan — a mum whose journey into motherhood didn’t follow the path she expected. After experiencing multiple miscarriages, Megan had already faced deep loss before becoming pregnant with Alana… finding out on the day of her dad’s funeral — a moment that, for her, felt like both a blessing and a gift — something she believes came from him. During her pregnancy, there were moments of uncertainty. Scans raised concerns, but she was ultimately told everything was fine — so she held onto hope. But when Alana was born, everything changed. Alana lives with Börjeson-Forssman-Lehmann Syndrome (BFLS) — an extremely rare condition, with only around 100 known cases worldwide. It’s something most people will never come across. This episode isn’t about having all the answers. It’s about learning to live without them. Megan shares the reality of navigating uncertainty about the future, raising a child with complex needs, and adapting to a life she never could have planned for. From public reactions to online judgement, she opens up about the harder moments — but also the strength she’s found along the way. Because alongside all of…

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