About this episode

This episode discusses the complexities of lipedema, a misunderstood condition affecting many women, featuring insights from experts at the Lipedema Foundation.

You have been told it is just weight. Just diet. Just effort. For millions of women with lipedema, that is not just wrong. It is decades of unnecessary suffering. In this episode of Bendy Bodies, I sit down with Kasi Grosvenor and Jesse Cochrane from the Lipedema Foundation to pull back the curtain on one of the most misdiagnosed and misunderstood conditions in women's health. Kasi spent decades fainting, being dismissed, and searching for answers before finally finding clarity at the intersection of lipedema and hereditary alpha tryptasemia. Her story is not unusual. It is the norm for this patient population. Jesse brings the science. Lipedema is not obesity. It is not a lifestyle problem. It is a chronic medical condition involving disproportionate, painful, fibrotic adipose tissue that resists caloric restriction and exercise by design. Emerging research points to extracellular matrix dysfunction as a potential shared biological thread connecting lipedema to Ehlers-Danlos Syndromes (EDS), hypermobility, Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS). The overlap is not coincidental. It may be biological. We cover what clinicians and…

People in this episode

Host: Dr. Linda Bluestein

Guests: Kasi Grosvenor, Jesse Cochrane

Topics covered

• lipedema
• women's health
• chronic medical conditions
• healthcare challenges
• biological research

Keywords

• lipedema
• chronic condition
• women's health
• Ehlers-Danlos Syndromes
• POTS
• MCAS
• fat tissue
• diagnosis
• healthcare

Mentioned in this episode

Organizations: Lipedema Foundation

More episodes of Bendy Bodies with Dr. Linda Bluestein

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• Why Everything You've Been Told About EDS Lifestyle Is Wrong with Dr. Dacre Knight (Ep 197) · May 21, 2026 · 1h 9m
• Too Flexible to Fix? Orthopedic Surgery and Hypermobility with Dr. Jocelyn Wittstein (Ep 196) · May 14, 2026 · 1h 10m

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