About this episode

This episode features a discussion on the rebranding of the Canadian Hemophilia Society to Bleeding Disorders Canada, highlighting its commitment to supporting individuals with bleeding disorders.

This is a special episode of Beyond the Thesis with Papa PhD, where we spotlight the inspiring transformation of one of Canada’s foremost patient advocacy organizations. In this off-series Podcasthon 2026 episode, guest host Fiona Robinson, a medical writer and editor specializing in inheritable bleeding disorders, sits down with Sarah Ford, Chief Executive Officer of the Canadian Hemophilia Society (CHS). Together, they explore the CHS’s exciting journey as the organization embarks on a significant rebranding - from its decades-long identity to the new name, Bleeding Disorders Canada / Troubles de la Coagulation Canada. You’ll hear how this change reflects a broader commitment to supporting all individuals and families affected by inheritable bleeding disorders, including hemophilia A and B, von Willebrand disease, and rare factor deficiencies, platelet disorders, women and girls with bleeding disorders, and people without a diagnosis.​ Drawing from community consultations and strategic planning, Sarah shares insights into honoring the organization's 70+ year legacy - including hemovigilance advocacy post-Krever Report - while expanding bilingual education on gene therapy, novel…

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