Nicole Johnson & Tom Horton: FOXG1 Research Foundation Stares Down The Impossible
About this episode
Nicole Johnson and Tom Horton discuss their efforts in advancing gene therapy for rare diseases through the FOXG1 Research Foundation.
She's the mom of a child with a rare condition, and she wouldn't take "no" for an answer from doctors. He walked 500 miles for his granddaughter, who has the same condition. Together, they're helping a foundation develop a gene therapy treatment faster and cheaper than the big pharma giants. Today, we speak with Nicole Johnson, founder of the FOXG1 Research Foundation, and Tom Horton, former CEO of American Airlines. Together, they are proving that a lean, parent-led organization can achieve breakthroughs usually reserved for billion-dollar pharmaceutical giants. In this episode, we discuss: The Startup Model for Science : How Nicole and Tom applied "lean startup" principles to fund a lab and launch a clinical trial. 500 Miles for a Cure : Tom Horton shares the lessons learned from his 500-mile walk carrying the names and prayers of children who cannot walk themselves. Defying the Odds : An update on Josie, the beautiful 14-year-old who inspired the movement. A Blueprint for Others : Why this breakthrough provides hope for thousands of other rare diseases left on the shelf. Chapters & Timed Links: [04:22] The Diagnosis: Nicole recounts the moment she was told "there's nothing you…
People in this episode
Guests: Nicole Johnson, Tom Horton
Mentioned in this episode
Organizations: FOXG1 Research Foundation, American Airlines
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