About this episode

The episode discusses the importance of SYNGAP1 Awareness Day and ongoing community efforts to support families affected by SYNGAP1.

Friday, June 19, 2026 - Week 25 June 21 is SYNGAP1 Awareness Day, but we have made it SYNGAP1 Awareness month! Why 6/21? Because 6p21.32 Donate! cureSYNGAP1.org/Donate #ThisIsOursToLose & #BurdenHopeProgress watch #S10e208 https://curesyngap1.org/podcasts/syngap10/tony-update-thisisourstolose-more-great-results-from-camp4-nightofimpact-in-9-days-s10e208/ New family email, very good, lots of questions. It’s all here. Reach out, we are here for you and you are welcome in this community – you are part of it whether you like it or not. Raise money. Join our host committee for 2nd SF event next year. Believe that we are doing the best we possibly can, and you would be adrift without a PAG. If you think this is painful, imagine if we weren't here! Register for the Conference. Book tickets to DEN now. cureSYNGAP1.org/Denver Join us -- make this org better for all of us and all our kids for all their lives. Complex work doesn't fit neatly in 10 minutes anymore... Health Economics and Market Access work is going well, we will put out an RFP shortly. NATURAL HISTORYGoes On! Make sure you are in it. https://curesyngap1.org/resources/studies/syngap1-prommis/ Orlando/McKee Grant…

Topics covered

• SYNGAP1 Awareness
• fundraising
• community support
• health economics
• developmental assessments

Keywords

• SYNGAP1
• Awareness Day
• fundraising
• community
• health economics
• developmental assessments

Mentioned in this episode

Organizations: Syngap Research Fund, cureSYNGAP1.org, Citizen Health, Orlando/McKee Grant

Books & works: #S10e210, #S10e208, Validating Remote Developmental Assessments in SYNGAP1-Related Disorders

Places: GrandHyatt

More episodes of CURE SYNGAP1 PODCAST aka SYNGAP10

• #Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212 · July 5, 2026 · 10 min
• We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211 · June 26, 2026 · 10 min

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