Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206
About this episode
The episode discusses the importance of longitudinal data in research and celebrates the success of recent fundraising efforts for SYNGAP1.
Wednesday, May 6, 2026 - Week 19 Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend. https://www.linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791427486466048-j8SB WEBINARS! CURE-ID Webinar tomorrow! Register now. Thu May 7, 2026 1:30pm – 3pm (PDT) cureSYNGAP1.org/cureID Next week, especially NY families, while you are registering, please make sure to go to this one with Dr. Buxbaum from Mt. Sinai. curesyngap1.org/seaver https://www.linkedin.com/posts/curesyngap1_curesyngap1-syngap1-rarediseaseresearch-activity-7457507565527044096-dDEK Longitudinal Data Matters - Every six months or more! Study list! CURE SYNGAP1 CONNECT http://curesyngap1.org/connect Citizen Health https://www.citizen.health/ai-advocate/syngap1 Combined Brain ProMMiS https://www.linkedin.com/feed/update/urn:li:activity:7450196488300728320 & Rare-X, the same week. OR DSC. #S10e CURE-ID for Drug responses. Webinar: Thu May 7, 2026 1:30pm – 3pm (PDT) cureSYNGAP1.org/cureID 6th ANNUAL SPRINT FOR SYNGAP1, we raised over $300k! (Gross) Thank you Tavillas for raising over $170k this will go to the Missense fund. We spent over $¼M on missense last year. Thank you Emily Barnes for hosting a…
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