About this episode

#NightOfImpact was a successful fundraising event featuring Dr. Helen R Willsey and other speakers discussing advancements in SYNGAP1 research.

Wednesday, June 10, 2026 - Week 24 #NightOfImpact was 15 Days ago! Photos: https://jeaniehorton.pixieset.com/curesyngap1nightofimpact2026/ Impact: $800k+, of which $300 was our match. Industry: Multiple Academics & Clinicians: Stanford, Berkeley & UCSF. Cross-pollination is always good. Speakers: Ash, John, Kathryn, Helen Willsey & Me. Only got a video of John, which was a mistake. If you took one, please share. Here is John: https://www.linkedin.com/posts/graglia_still-reflecting-on-our-inaugural-cure-syngap1-ugcPost-7467439971294048256-cUf9/ Dr. Willsey Rocks. Willsey Press Release https://www.eurekalert.org/news-releases/1130924 (both were at NoI). A few other points on HRW, as we call her. Simons: https://curesyngap1.org/blog/future-research-for-syngap1-how-helen-willsey-broke-new-ground-frogs-in-hand/ Willsey in Neuron 2021: https://www.cell.com/neuron/pdf/S0896-6273(21)00002-7.pdf (Frogs) Birtele in Nature Neuroscience 2023: https://www.nature.com/articles/s41593-023-01477-3 (Confirms) McCluskey in Nature Communications 2025: https://www.nature.com/articles/s41467-025-57342-3 (GI)Kostyanovskaya in BioRxiv 2025: https://pubmed.ncbi.nlm.nih.gov/39677731 (cilium)…

People in this episode

Guest: Dr. Helen R Willsey

Topics covered

• fundraising
• research
• neuroscience
• community impact
• academic collaboration

Keywords

• SYNGAP1
• fundraising
• Dr. Helen R Willsey
• neuroscience
• academic collaboration
• CURE SYNGAP1
• community impact

Mentioned in this episode

Organizations: Syngap Research Fund, Stanford, Berkeley, UCSF

Books & works: Willsey Press Release, Neuron 2021, Nature Neuroscience 2023, Nature Communications 2025, BioRxiv 2025

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