SFN Dad To Dad 433 - Jason Lopez of Bear, DE, Father of Three Including One With Regressive Down Syndrome Disorder (RDSD)
About this episode
Jason Lopez shares his experiences as a father of three, including a daughter with Regressive Down Syndrome Disorder, and discusses the importance of support networks for families.
Our guest this week is Jason Lopez of Bear, DE who is the Associate Director of Manufacturing in Delaware at SDIX, a bio-technology research firm and father of three including a daughter with Down Syndrome Regressive Disorder (DSRD). Jason and his wife, Lisa, have been married for 23 years and are the proud parents of three children: Kayleigh (29), Jason (20) and middle child Rebecca (22) who has DSRD. We learn about a rare form of Down Syndrome known as Regressive Down Syndrome Disorder (RDSD) a condition that occurs in some adolescents and young adults with Down Syndrome. Regression is used to describe the loss of skills an individual has previously learned. These skills can be daily living, language, movement, or social skills. The loss is often sudden and occurs over a period of weeks to months. We also learn about Jason's invovlement with D.A.D.S. (Dads Appreciating Down Syndrome) a national orgainization with chapters scattered across the country. It's an authentic and uplifting story about overcoming adversity and acceptance all on this episode of the SFN Dad To Dad Podcast. Show Links - Phone – (302) 897-8590 Email – pez_shpe@yahoo.com Down Syndrome Regressive Disorder…
People in this episode
Host: David Hirsch
Guest: Jason Lopez
Topics covered
- Down Syndrome
- parenting
- family support
- adversity
- acceptance
- healthcare
Keywords
- Down Syndrome
- Regressive Down Syndrome Disorder
- parenting
- D.A.D.S.
- family
- adversity
- acceptance
Mentioned in this episode
Organizations: SDIX, D.A.D.S., NDSS
Places: Bear, DE, Delaware
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- SFN Dad To Dad 431 - Mike Durso of Philadelphia, PA SVP at Ping Identity, Father of Three Including One With a Rare Disease
- SFN Dad To Dad 430 - Nathan Simpson of Colorado Springs, CO Father of Nine, Including One With Tuberous Sclerosis
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