About this episode

Paula Naughton shares her experience of grief and advocacy as a mother of three boys diagnosed with Duchenne muscular dystrophy, including the loss of her son Archie.

This week I sit down with Paula Naughton from Roscommon, mum to three boys Archie, George, and Isaac . All three were diagnosed with Duchenne muscular dystrophy (DMD , a life-limiting illness with no cure. Sadly Paula lost her son Archie at just 16 years old. George and Isaac, now also 16, continue to live with the condition as their family fights tirelessly for access to emerging treatments and trials. In this deeply moving conversation, Paula speaks about grief in all its forms, the loss of Archie, the heartbreak of watching your children lose their health, and the reality of living with anticipatory grief while still trying to hold hope. Paula speaks with incredible honesty, strength, and insight about motherhood, resilience, advocacy, and the unimaginable balancing act of loving fiercely while living with uncertainty every day. To learn more about DMD and support the family’s campaign, visit: 🌐 www.joinourboys.org You can also follow their journey on social media: 📱 Instagram: @joinourboys_ 📘 Facebook: Join Our Boys

People in this episode

Guest: Paula Naughton

Topics covered

• grief
• Duchenne muscular dystrophy
• motherhood
• resilience
• advocacy
• healthcare access
• anticipatory grief

Keywords

• Duchenne muscular dystrophy
• grief
• motherhood
• advocacy
• health
• loss
• hope
• resilience
• family

Mentioned in this episode

Organizations: Grief Ireland, www.joinourboys.org, Instagram, Facebook

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