About this episode

Chuck Knueve shares his 20-year journey to diagnose his son's Cushing’s disease and the importance of advocacy in healthcare.

Daniel Robbins talks with retired pharmacist turned author Chuck Knueve about the long, brutal road to diagnosing his son with Cushing’s disease and why he wrote Surviving Cushing’s Disease: A Young Man’s Journey at 73. Chuck explains how the condition mimics common illnesses, why testing happens too late, and how a 20-year delay can leave permanent damage even after treatment. He shares the practical red flags, why families must advocate hard, and the moment he chose to tell the story so others can get an earlier diagnosis.

People in this episode

Host: Daniel Robbins

Guest: Chuck Knueve

Topics covered

• diagnosis
• Cushing's disease
• health advocacy
• patient experience
• family support

Keywords

• Cushing's disease
• diagnosis delay
• healthcare advocacy
• Chuck Knueve
• patient stories

Mentioned in this episode

Books & works: Surviving Cushing’s Disease: A Young Man’s Journey

Places: Cushing’s disease

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