About this episode

The episode features an interview with Nicolo Betoni discussing his presentation at the American Academy of Neurology conference.

HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria. In the second installment of HC&U Bite Sized, we talk to Nicolo Betoni about his presentation at the American Academy of Neurology conference. Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

People in this episode

Hosts: Ben Massengale, Lindsey Massengale

Guest: Nicolo Betoni

Topics covered

• homocystinuria
• neurology
• patient advocacy
• healthcare

Mentioned in this episode

Organizations: HCU Network America, American Academy of Neurology, Rare-X, HC&U, HCUNA

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• Clinical Trials Bonus Episode 2: Harmony Global Clinical Trials Live Q and A · July 11, 2026 · 16 min
• Clinical Trials Bonus Episode 1: Clinical Trials 101 · July 3, 2026 · 59 min
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• Episode 52 with Brandon Tornes · June 25, 2026 · 25 min
• HC&U Bite Sized with Brittany Parke · June 18, 2026 · 10 min

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