About this episode

Reuben and Sherri Johnson discuss the challenges of living with chronic granulomatous disease and navigating the healthcare system.

TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT.Undiagnosed.Reuben.pdf Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some of the answers that are often elusive for others. Reuben learned early in life that joy is essential and simple. However, he would soon have to confront the cruelty of sickness and the cold realities of a medical system that either didn't understand him or didn't care. These things formed a perfect storm in the center of his life that threatened to wash away the joy that once came so easily to him. Find Reuben and Sherri on LinkedIn: https://www.linkedin.com/in/flyduo/ Your support of the Immune Deficiency Foundation helps ensure that people like Reuben get the education, advocacy, and support they deserve. To learn more about our mission and to donate, visit primaryimmune.org/donate. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

People in this episode

Guests: Reuben Johnson, Sherri Johnson

Topics covered

• chronic illness
• healthcare
• patient advocacy
• chronic granulomatous disease
• medical system

Keywords

• chronic granulomatous disease
• CGD
• healthcare
• chronic illness
• patient support

Mentioned in this episode

Organizations: Immune Deficiency Foundation, LinkedIn, primaryimmune.org

Books & works: TRANSCRIPT

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