About this episode

The episode discusses the experiences of parents raising a child with a rare neurological disease and the challenges they face.

A Different Story was born out of our experience of parents to a little boy living with a rare neurological disease. From obtaining a diagnosis to finding quality care to fighting for accessible education and to building a supportive community, their experience in this journey is the foundation of A Different Story. Together in conversation... The post 🎤RAISING CHILDREN WITH RARE DISEASES | Sarah LaPham, Nina Aziz Justin | A Different Story appeared first on .

People in this episode

Host: Regina Larko

Guests: Sarah LaPham, Nina Aziz Justin

Topics covered

• rare diseases
• parenting
• neurological disease
• community support
• education access

Keywords

• rare diseases
• parenting
• neurological disease
• education
• community

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