Amy Rose - Misdiagnosed Lyme Disease, Brain Inflammation, and the Fight for Lyme Awareness
About this episode
Amy Rose shares her harrowing journey of misdiagnosed Lyme disease and the importance of patient advocacy.
What happens when Lyme disease is repeatedly dismissed even when the symptoms are clear? In this episode of Integrative Lyme Solutions, Dr. K speaks with Lyme advocate Amy Rose, who spent more than eight years searching for answers after being infected by a tick bite in 2008. Within days she developed severe flu-like symptoms and later discovered a large bullseye rash on her shoulder. Despite these classic warning signs, doctors repeatedly told her Lyme disease was impossible because she had been bitten in Arkansas. Multiple tests came back negative and she was given numerous misdiagnoses and medications instead of answers. Amy shares how her health continued to decline while she saw 27 doctors before finally receiving a proper diagnosis from a Lyme-literate practitioner. She also explains how this experience led her to start the Arkansas Lyme Foundation to support patients in a state where Lyme disease is still widely denied. Her story reveals the serious gaps in Lyme testing, the consequences of misdiagnosis, and the power of patient advocacy. Key Takeaways: 0:00 Introduction 2:15 Amy Rose’s Lyme infection and early symptoms in 2008 6:40 The bullseye rash and why Lyme was still…
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