Zoe Part One: Congenital Myasthenic Syndrome, Hyperemesis Gravidarum, Anxiety, Polyhydramnios, Initial Unknown Newborn Diagnosis, NICU, Piper Transfer, Prayer, Intuition

Zoe Part One: Congenital Myasthenic Syndrome, Hyperemesis Gravidarum, Anxiety, Polyhydramnios, Initial Unknown Newborn Diagnosis, NICU, Piper Transfer, Prayer, Intuition

May 31, 2026 · 1h 34m

About this episode

Zoe shares her journey of discovering her daughter Sophia's rare genetic disorder after an uncomplicated pregnancy.

Welcome to Part One of Zoe's Story, discovering that her baby girl Sophia was born with Congenital Myasthenic Syndrome. After an uncomplicated pregnancy Zoe instinctively knew that her daughter required further medical support after birth. She takes us through her pregnancy and postpartum experience and the journey into diagnosis of Sophia's rare genetic disorder. This is part one of her incredible story and I hope you all enjoy X If you would like to share your story: https://www.mothergroup.com.au/share-your-story You can find more of Zoe's incredible work and join her community of Medical Mums here: https://www.facebook.com/groups/medicalmumsaustralia/ If you require further support: PANDA: 1300 726 306 Gidget: 1300 851 758

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