About this episode

Raqueal shares her journey with essential thrombocythemia, discussing challenges in medical communication and the importance of self-advocacy.

On this episode of the MPN Pod, hosts Kay and Josh sit down with Raqueal, a 33-year-old mother of two from Arizona, to hear her journey with essential thrombocythemia (ET), from an unexpected discovery during pregnancy to years of inadequate medical communication and, ultimately, finding a specialist who truly listened. Raqueal shares how the "watch and wait" approach left her without answers, and how she learned to advocate for herself through research, online communities, and the courage to seek a second opinion. She also opens up about the invisible toll of living with ET, including debilitating fatigue, isolation, and the emotional weight of a diagnosis others can't see. Check out piecetogetheret.com and piecetogetherpv.com to learn more. Transparency Statement: The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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