My Medical Mystery: Finally Getting Diagnosed & Why You Need to Advocate for Yourself
About this episode
Maci Jones shares her journey of receiving an autoimmune diagnosis after years of being dismissed by doctors, emphasizing the importance of self-advocacy in healthcare.
After four years of symptoms and being told nothing was wrong, I finally received an autoimmune diagnosis… and this episode tells the entire story. I walk through the timeline of infections, gut issues, hormone imbalances, chronic pain, and poor recovery that shaped my college years, and how inflammation connected everything. I also share what it was like being dismissed, misdiagnosed, and told it was “just IBS,” despite knowing something deeper was wrong. Most importantly, this episode is about self-advocacy. If you’ve ever felt unheard by doctors, confused by your body, or afraid to keep pushing for answers, I hope my story reminds you that you’re not crazy and that finding the root cause is worth it. Personal IG: @macileejones https://www.instagram.com/macileejones?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw== Podcast IG: @myverbaljournal.letschat https://www.instagram.com/myverbaljournal.letschat?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==
People in this episode
Host: Maci Jones
Topics covered
- autoimmune diagnosis
- self-advocacy
- chronic pain
- health issues
- doctor dismissal
Keywords
- autoimmune
- self-advocacy
- chronic pain
- healthcare
- diagnosis
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