Network Effects: Multi-Site Research for Children with Medical Complexity‌

About this episode

The episode discusses the Systems and Policy Research Network's efforts in multi-site research for children with special healthcare needs.

In this Complex Care Journal Club podcast episode, Drs. Ryan Coller, Jay Berry, Allysa Ware, and Ms. Dania Champion describe the Systems and Policy Research Network (SPRNetwork), a multi-site research collaborative focused on children with special healthcare needs. They discuss the network's core research areas — child quality of life, family well-being, and family engagement — as well as recent work leveraging national Medicaid and hospitalization data to inform federal policy. They also highlight the network's Early Investigator Program, its lived experience partner advisory model, and pathways for researchers and families to get involved at SPRnetwork.org. SPEAKERS Ryan Coller, MD, MPH Co-Director, SPRNetwork Associate Professor, Chief, Division of Hospital Medicine & Complex Care, University of Wisconsin School of Medicine and Public Health, UW Health American Family Children's Hospital Jay Berry, MD, MPH Executive Director, SPRNetwork Co-Director of the Children's Hospital Association Health Services Research Academy Chief of Complex Care in the Division of General Pediatrics, Department of Pediatrics and Department of Plastic and Oral Surgery, Boston Children's Hospital…

People in this episode

Hosts: Kristina Malik, MD, Kristina Malik

Guests: Ryan Coller, MD, MPH, Jay Berry, MD, MPH, Allysa Ware, PhD, MSW, Dania Champion, MS, BS, Ryan Coller, Jay Berry, Allysa Ware, Dania Champion

Topics covered

• multi-site research
• children with medical complexity
• healthcare policy
• family engagement
• quality of life
• Medicaid data

Keywords

• SPRNetwork
• child quality of life
• family well-being
• healthcare needs
• research collaboration
• Medicaid
• hospitalization data

Mentioned in this episode

Organizations: Systems and Policy Research Network, University of Wisconsin School of Medicine and Public Health, Boston Children's Hospital, Harvard Medical School, Family Voices, Children's Hospital Association Health Services Research Academy

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