Adrenoleukodystrophy With Elisa From New York
About this episode
Elisa shares the story of her son Aidan's battle with adrenoleukodystrophy and her advocacy for newborn screening.
Send us Fan Mail Elisa's son, Aidan, was born healthy—but by first grade, he began losing his vision. He was later diagnosed with adrenoleukodystrophy (ALD), a rare genetic condition that progresses rapidly without early intervention. Aidan passed away at just 7 years old. After his diagnosis, Elisa learned that a newborn screening test for ALD already existed—but it had not been implemented in her state at the time. In this episode, Elisa shares Aidan’s story and how she turned her grief int...
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