FoxG1 With Patricia from New Jersey in Person in Pennsylvania
About this episode
In this episode, Joanna interviews advocate Patricia Geurds about her daughter Kinsley's journey with FOXG1 syndrome and the impact on their family.
Send us Fan Mail FOXG1 doesn't just affect the person living with the diagnosis—it changes an entire family. In this special episode of Rare Connection, I travel to Pennsylvania for my first in-person podcast interview with New Jersey advocate, author, and mother Patricia Geurds. Patricia shares her daughter Kinsley's journey with FOXG1 syndrome, discussing the realities of hospitalizations, feeding tubes, a Broviac catheter, specialized surgeries, and the challenges of raising a child with a...
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