Friedreich's Ataxia With Alexis From Tennessee

About this episode

In this episode, Joanna speaks with Alexis Baker about her journey with Friedreich's ataxia and the challenges of maintaining independence.

Send us Fan Mail What does it really take to maintain independence when your body is changing? For people living with rare diseases, that question becomes part of everyday life—navigating changes in mobility, access to care, and the challenge of finding the right support. In this episode of Rare Connection, I speak with Alexis Baker, who shares her journey to a diagnosis of Friedreich's ataxia, a rare, progressive condition that affects coordination, balance, and independence. Like many in th...

People in this episode

Host: Joanna

Guest: Alexis Baker

Topics covered

• rare diseases
• Friedreich's ataxia
• independence
• mobility
• support systems

Keywords

• Friedreich's ataxia
• rare diseases
• independence
• mobility
• support

Mentioned in this episode

Books & works: Friedreich's ataxia

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