Inside a Drug Trial for a Rare Childhood Disease: Drs. Sarah Tehseen & Katie Felton
About this episode
Drs. Sarah Tehseen and Katie Felton discuss their work on a drug trial for a rare childhood disease and the challenges faced in pediatric medicine.
Most childhoods don't involve sitting at the hospital for an infusion of medication, transfusions on weekends, or worrying that classmates will comment on the colour of your skin. For one Saskatoon teen with an ultra-rare blood disease, that's everyday life. She was diagnosed with a form of anemia so uncommon only a handful of cases have been identified globally. In this episode, Sarah Tehseen (MD) & Katie Felton (MD) share how they're working to change her "normal" by opening a phase 3 pharmaceutical trial and fighting for a better quality of life. We hear how Tehseen and Felton each got into medicine, why they love working with kids, and what it's like to be there for families on "one of the worst days of their life." "It's getting them through the next day, week, month and years ahead," said Felton. "So even though, yeah, I deal with blood disorders and cancer, which are really can be difficult conversations with families, we still have fun." They pull back the curtain on the effort it took to bring a this drug trial for an ultra-rare form of anemia to Jim Pattison Children's Hospital. From having to respond to 40 or 50 e-mails a day, to forfeiting vacation time as their…
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