Love, ALS, and Life After Survivor with Jonathan Penner

Love, ALS, and Life After Survivor with Jonathan Penner

From So Your Parents Are Old by Vanessa Grigoriadis

May 12, 2026 · 37 min · Season 1 · Episode 32

About this episode

Jonathan Penner discusses the impact of his wife Stacy Title's ALS diagnosis on their lives and the importance of staying present during difficult times.

When Jonathan Penner’s wife Stacy Title was diagnosed with ALS, their life changed with shocking speed. He joins Vanessa to talk about caregiving, survival, and the hard-won wisdom of staying present even when everything is getting worse. Connect to resources through Compassionate Care ALS (CCALS) . You can also read the Vulture article about Stacy’s fight to make one final movie: Walking Time Bomb . To connect with the team, find us on ⁠ Instagram⁠ and ⁠ Youtube⁠ , or shoot us an email at soyourparentsareold@gmail.com. We want to hear from you! Lily Houston Smith is our senior producer; music by Mark McAdam and Amber Devereux.

People in this episode

Host: Vanessa Grigoriadis

Guest: Jonathan Penner

Topics covered

  • caregiving
  • ALS
  • survival
  • relationships
  • wisdom
  • life changes

Keywords

  • ALS
  • caregiving
  • survival
  • relationships
  • wisdom
  • life changes
  • Stacy Title
  • Jonathan Penner

Mentioned in this episode

Organizations: Compassionate Care ALS

Books & works: Walking Time Bomb

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