Hope in Action: Fighting SPG50 and Beyond with Elpida Therapeutics
About this episode
Terry Pirovolakis shares his journey of creating Elpida Therapeutics to fight the ultra-rare disease SPG50 through gene therapy innovation.
When Terry Pirovolakis learned his son had an ultra-rare neurodegenerative disease, SPG50, he refused to accept “no options.” What started as a desperate search for hope became Elpida Therapeutics, a nonprofit driving gene therapy innovation for multiple rare diseases. In this episode, Terry shares the remarkable journey from diagnosis to clinical trials, the power of partnerships, and why urgency matters when every day counts. Show Notes From Mystery to Medicine: The Science Behind a Mother’s Search | Podcast Taking a Customized and Collaborative Approach to Therapeutic Development | Podcast Rare Disease Research for Drug Development | Charles River Rare Disease | Charles River Discovery | Charles River Beyond The Diagnosis
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