About this episode

Hsien and Sammy chat with Sunny Brouse about her experience with ALS and the importance of quality of life.

In this episode, Hsien and Sammy chat with Sunny Brouse. Sunny was diagnosed with ALS over a decade ago and leads a global community of young women with ALS. We talk about her long, disorienting road to diagnosis, what clinicians miss when they focus on function over quality of life and how dark humor, planning ahead and honest talk can protect hope. Learn more about Sunny's journey here: https://sunnystrong.com/ Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

People in this episode

Hosts: Hsien Seow, Samantha Winemaker

Guest: Sunny Brouse

Topics covered

• ALS
• quality of life
• diagnosis journey
• dark humor
• hope

Keywords

• ALS
• diagnosis
• quality of life
• dark humor
• hope
• young women
• community

Mentioned in this episode

Organizations: sunnystrong.com, waitingroomrevolution.com

Books & works: Maypole

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