About this episode

The episode explores the life of Emma, a child with a rare condition that makes UV light dangerous, and her community's efforts to create a fulfilling childhood.

Emma has never felt the sun on her skin. Born with a rare condition that makes UV light dangerous, she lives by sunscreen, meters, and moonlight. But she’s also part of a community finding extraordinary ways to make ordinary childhood possible. And thanks to new research, the future may actually be bright. Hosted by Dana Schwartz, Zaron Burnett, and Jason English Written by Jake Rossen Senior Producer is Josh Fisher Editing and Sound Design by Jonathan Washington Additional Editing by Mary Dooe Mixing and Mastering by Josh Fisher Original Music by Elise McCoy Show Logo by Lucy Quintanilla Executive Producer is Jason English Question? Comment? Want to share your favorite episode? You can always reach us at veryspecialepisodes@gmail.com . See omnystudio.com/listener for privacy information.

People in this episode

Hosts: Dana Schwartz, Zaron Burnett, Jason English

Topics covered

• rare condition
• childhood
• community support
• UV light
• health
• research
• future

Keywords

• rare condition
• UV light
• childhood
• community
• health
• research
• sunscreen

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