Dealing With Grief As A SEN Parent

Dealing With Grief As A SEN Parent

From We're Not Your Typical Podcast by LaunchPod Studios

May 25, 2026 · 1h 0m · Episode 62

About this episode

Carly shares her emotional journey as a SEN parent raising her son Barney, discussing the challenges of autism and epilepsy.

In this deeply emotional episode, Carly opens up about her journey raising her son Barney from the early signs of autism and delayed communication, to the terrifying reality of seizures and navigating a world that often doesn’t understand children with additional needs. Carly shares the grief, fear, guilt and love that comes with parenting a non-verbal autistic child, including the moment she realised Barney wasn’t developing like other children, the challenges of mainstream school, and the heartbreaking experience of witnessing his first seizure at just nine years old. This episode is an honest conversation about autism, epilepsy, SEN parenting, and the emotional realities families face behind closed doors. It’s raw, eye-opening and incredibly powerful. Sponsored by B and W https://www.blackandwhitebridging.co.uk/ #podcastreel #realstories #supportmatters #turnersyndrome #parentingjourney #realstories #podcastclips #emotionalstory Hosted by Simplecast, an AdsWizz company. See https://pcm.adswizz.com for information about our collection and use of personal data for advertising.

People in this episode

Guest: Carly

Topics covered

  • grief
  • autism
  • SEN parenting
  • epilepsy
  • emotional realities
  • parenting challenges

Keywords

  • autism
  • SEN parenting
  • epilepsy
  • grief
  • non-verbal
  • parenting
  • seizures
  • delayed communication
  • mainstream school

Sponsors

B and W

Mentioned in this episode

Organizations: LaunchPod Studios, Simplecast, AdsWizz

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