About this episode

Dr. Linda Bluestein and Rebecca Gluck discuss navigating the complexities of Ehlers-Danlos syndromes and related health issues amidst information overload.

Too many diagnoses. Too many opinions. Too many tabs open. Not enough clarity. If you've ever felt overwhelmed trying to navigate Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorder (HSD), POTS, MCAS, chronic pain, or other complex health issues, you're not alone. In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by physician assistant Rebecca Gluck, PA-C, who brings specialized genetics experience from working alongside Dr. Clair Francomano and serves on the Ehlers-Danlos Society's Medical and Scientific Advisory Board and Road to 2026 Research Committee. Together, they discuss how patients and families can move from information overload to a clearer, more practical plan. They explore how to evaluate online communities, AI tools, direct-to-consumer genetic testing, and conflicting medical opinions without becoming even more overwhelmed. Rebecca and Dr. Bluestein explain why diagnosis is often the beginning, not the end, of the journey, and why there is no single "EDS expert" who can solve every problem in one visit. They also walk through how to prioritize symptoms, identify the most functionally limiting issues, avoid…

More episodes of Bendy Bodies with Dr. Linda Bluestein

• The Hidden Link Between Long COVID, Lyme Disease & Hypermobility with Dr. Ina Stephens (Ep 205) · July 16, 2026 · 1h 28m
• What Most Doctors Never Explain About EDS | Office Hours (Ep 204) · July 9, 2026 · 1h 6m
• Why Small Wins Matter More Than Miracle Cures in EDS and HSD: The MENS-PMMS Method™ with Dr. Dacre Knight (Ep 203) · July 2, 2026 · 1h 10m
• Physical Therapy for EDS: Why It Fails and How to Make It Work | Ep. 201 · June 18, 2026 · 1h 9m

Explore listener stats, chart rankings, contacts and more on the Bendy Bodies with Dr. Linda Bluestein podcast page.