About this episode

Zach shares his journey with Hereditary Angioedema, highlighting challenges and modern treatments.

In this episode of the #BeyondHAE podcast, host Zach shares his powerful journey growing up with Hereditary Angioedema (HAE). His story chronicles his experience dealing with an especially challenging attack after high-fiving a palm tree, learning self-infusions as a teen, and finally discovering a sense of freedom through modern treatments. Sponsored by KalVista Pharmaceuticals, this episode takes listeners inside Zach’s experience with the oral on-demand treatment EKTERLY®, which transformed the way he manages HAE. Through resilience, advocacy, and hope, Zach’s story offers inspiration to anyone navigating life with a rare disease. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsor, ⁠⁠⁠⁠⁠⁠⁠KalVista.

People in this episode

Host: Zach

Topics covered

• Hereditary Angioedema
• personal journey
• advocacy
• modern treatments
• youth empowerment

Keywords

• Hereditary Angioedema
• HAE
• self-infusions
• EKTERLY
• KalVista
• advocacy
• rare disease

Sponsors

KalVista Pharmaceuticals

Mentioned in this episode

Organizations: Hereditary Angioedema Association

Products: EKTERLY®

More episodes of #BeyondHAE Youth Produced Podcast

• Voices of the Next Generation: #BeyondHAE · May 6, 2026 · 11 min
• #BeyondHAE Podcast: Moments That Mattered: HAEA Youth on 2025 and Beyond · January 2, 2026 · 17 min
• #BeyondHAE Podcast: Advocating for Yourself As You Transition into College · August 25, 2025 · 13 min
• #BeyondHAE Podcast: A Family’s Journey with HAE · June 30, 2025 · 10 min
• #BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy · May 1, 2025 · 22 min
• #BeyondHAE Podcast: A Letter to my 10 year old Self · March 4, 2025 · 16 min

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