About this episode

The episode features HAEA Youth Leadership Council members reflecting on 2025 and discussing future opportunities for the HAEA youth community.

In this episode of the #BeyondHAE Podcast, host Kobe sits down with HAEA Youth Leadership Council members Sophia, Cassidy, and Zach for an engaging and inspiring conversation. Together, they reflect on memorable highlights from HAEA events and youth programs throughout 2025, sharing personal experiences and key moments that made the year meaningful. The group also looks ahead to the exciting opportunities, initiatives, and events coming in the new year, offering listeners a preview of what’s next for the HAEA youth community. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.

People in this episode

Host: Kobe

Guests: Sophia, Cassidy, Zach

Topics covered

• youth leadership
• personal experiences
• community events
• future initiatives
• patient advocacy

Keywords

• HAEA
• youth programs
• leadership council
• community support
• patient advocacy

Mentioned in this episode

Organizations: Hereditary Angioedema Association

More episodes of #BeyondHAE Youth Produced Podcast

• Voices of the Next Generation: #BeyondHAE · May 6, 2026 · 11 min
• #BeyondHAE: High-Fiving Palm Trees · November 3, 2025 · 13 min
• #BeyondHAE Podcast: Advocating for Yourself As You Transition into College · August 25, 2025 · 13 min
• #BeyondHAE Podcast: A Family’s Journey with HAE · June 30, 2025 · 10 min
• #BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy · May 1, 2025 · 22 min
• #BeyondHAE Podcast: A Letter to my 10 year old Self · March 4, 2025 · 16 min

Explore listener stats, chart rankings, contacts and more on the #BeyondHAE Youth Produced Podcast podcast page.