About this episode

The episode discusses the complexities of managing health data privacy and permissions with insights from Dr. Fabienne Bourgeois.

Your health data belongs to you—but how can you share it safely? Fabienne Bourgeois, MD, exposes the complex truth about privacy, permissions, and data control. Summary According to Fabienne Bourgeois, MD, patients want control over their health data, but privacy preferences and constant changes complicate this. The discussion is relevant to people with disabilities, caregivers, and others navigating complex health information. About 80% of people share common privacy concerns that current systems can’t address. The remaining 20% need more detailed controls and customization, though balancing autonomy with privacy remains challenging. Ownership means individuals have the right to participate in research and make informed choices. They need “digital intermediaries”— professionals who assist with data sharing—and genuinely intuitive interfaces. Privacy protections must remain a top priority as health and AI tools continue to develop. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via…

People in this episode

Host: Danny van Leeuwen

Guest: Fabienne Bourgeois, MD

Topics covered

• health data
• privacy
• permissions
• data control
• patient autonomy
• digital intermediaries

Keywords

• health data
• privacy
• permissions
• data sharing
• patient control
• digital intermediaries
• AI tools

Mentioned in this episode

Organizations: Health Hats

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