Terrible Tightrope

About this episode

Marcia discusses the challenges of managing her health, advocacy efforts, and daily responsibilities.

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on top of all of that the day-to-day living things of housekeeping and going to treatments. It's all more energy I have and yet it all needs to be done. And trying to navigate the competing needs of these things is like a terrible tightrope Links I talked about in the episode Sick times republish of op-ed March 20th 2025 https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884 GoFundMe https://gofund.me/6d981312 Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing Full info in gfm update https://gofund.me/6d981312 Housekeeping GoFundMe https://gofund.me/73aeb36e5 Petition Open for a second round of signatures https://bit.ly/Marcia_petition TheAtlantic article just came out that includes me(It was a gift link and now that seems to have expired but hopefully you can find a way to see it)…

People in this episode

Host: marcia doherty

Topics covered

• advocacy
• healthcare
• government change
• personal struggle
• fundraising
• daily life

Keywords

• mitochondria
• rest
• survival
• GoFundMe
• advocacy
• housekeeping
• treatments
• petition

Mentioned in this episode

Organizations: GoFundMe, CTV, The Atlantic

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• working outside a tiny ME energy envelope is like borrowing money from the mob, you will pay dearly! · May 4, 2026 · 29 min
• some little pieces of good news amidst the difficulty · April 23, 2026 · 9 min