I AM MADELINE

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking everything out of me. hopefully I can get somebody to do one last look over before I send it. I'm crossing my fingers that's before Wednesday. Cuz I really needed to get sent off. GoFundMe money only for sure loss until mid-July and it's already mid June I also talk about housekeeping, the The ongoing problem with the downstairs ductwork venting into my apartment, and ongoing problems with management in my BC housing buildingSo I'm documenting the process of making the document lol. Especially with everything else that's going on. I really do feel like garbage today after spending so long working on it.NOTE; please forgive the background hum. That's the air conditioner with fans and air purifiers going. I would normally turn some of those off but the downstairs stink keeps messing with the air conditioner's ability to do its job especially cuz I kept having to leave the kitchen and bathroom fans on and then regularly open the balcony door and turn The aircon off. So I hope that's okay. I didn't think it would be quite so loud but then I haven't had the aircon and the fans on at the same time when I did an episode. blArgh

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues Sick times republish of op-ed March 20th 2025https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884Linked by Twitter post https://x.com/i/status/2035058600604004423And once again Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing Full info in gfm update https://gofund.me/6d981312

where I talk about how I feel about My power and the leadership roles I have been in and the leadership roles I may be in in the near future depending on how the email campaign goes speaking of which I was told that if 12 people write to a news source to ask for the same story that it will happen🤞Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing Full info in gfm update https://gofund.me/6d981312 #myalgicE #disability #canpoli #longcovid #power

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it feels like to be dealing with so much and then have more land on my plate yesterday. I don't know how else to push back on the bias that thinks PWD on assistance are just sitting around eating bonbons and watching TV. blArghSo You can participate in the email campaign here's template for you https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing as well (Link and more information in GoFundMe update https://gofund.me/6d981312 )Why the campaign? because I was told that if a dozen or more people write in to ask for the same story that It is much more likely to happen. #myalgicE #disability #canpoli #longcovid #piday

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get into the hyperbaric chamber we're paying impossibilities that were just going to make me worse. The kind of long-term pain especially the fibromyalgia colliding with the dyslexia and the architectural pain which creates a special kind of hell. And add to that the new motor on my scooter creating a high-pitched war which collides with the sound sensitivity portion of ME and fibro. And on top of that because of forces outside of his control haven't been able to see my physio for almost 6 weeks. And I haven't had this extent of pain nausea and pain nightmares since the COVID lockdown. now that of course got way worse because it was months. But even being three to four weeks late for physio means i have quite the cacophony of pain, amplified exhaustion, and loss of emotional resiliency

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squashedand the episode icon is spring blossoms! cuz I adore spring. So that helps with my head space a bit. But I'm also worried about despair. currently going to run out of GoFundMe money the beginning of April. which is terrifying. it never gets less terrifying the whole month to month GoFundMe thing

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7malthough the petition has been presented we are leaving the document and its additional resources up in case anybody wants to use it as a template and also for a reference. I know everything I'm proposing saves the system massive amounts of money and problem solves disability and long viral disease deficitshttps://bit.ly/Marcia_petitionhttps://www.thecanary.co/opinion/2025/12/19/me-void/Also so you have it because it's my lived experience, here's my recent op-ed

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025/12/19/me-void/Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis https://www.mdpi.com/1648-9144/57/9/885