Self Advocacy in Polycythemia Vera: A Patient's Perspective

About this episode

The episode discusses the importance of self-advocacy for those living with polycythemia vera, featuring insights from guest Susan Brooks.

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her experiences with advocating for her own health, and the value of staying informed and connected within the PV community. Transparency Statement: The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

People in this episode

Hosts: Kay, Josh

Guest: Susan Brooks

Topics covered

• self-advocacy
• polycythemia vera
• patient experience
• health advocacy
• community support

Keywords

• polycythemia vera
• self-advocacy
• patient journey
• health advocacy
• PV community

Sponsors

PharmaEssentia

Mentioned in this episode

Organizations: Believe Limited

More episodes of MPN Pod: Stories from the Marrow

• Essential Thrombocythemia 101 · June 3, 2026 · 34 min
• Catching up with Gary Linehan: Living with PV and his Next Big Adventure · April 8, 2026 · 22 min
• A Young Patient's Journey: Balancing Career and Polycythemia Vera · March 4, 2026 · 25 min
• A 2025 Year in Review for Polycythemia Vera · January 21, 2026 · 26 min
• Self-Empowerment & Polycythemia Vera · December 10, 2025 · 28 min
• Managing Your PV and Mental Health · September 24, 2025 · 30 min