Self-Empowerment & Polycythemia Vera

About this episode

Tracy Rode discusses self-advocacy and navigating life with polycythemia vera.

On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocacy, the importance of credible information, and how to navigate the challenges of living with a rare cancer like polycythemia vera. Listeners will learn practical tips for preparing for doctor appointments, finding support, and empowering themselves throughout their PV journey. Transparency Statement: The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

People in this episode

Hosts: Kay, Josh

Guest: Tracy Rode

Topics covered

• self-advocacy
• polycythemia vera
• cancer survivorship
• patient empowerment
• doctor appointments
• support systems

Keywords

• polycythemia vera
• self-empowerment
• cancer
• patient advocacy
• healthcare
• support
• doctor appointments

Sponsors

PharmaEssentia

Mentioned in this episode

Organizations: Patient Empowerment Network, Believe Limited

More episodes of MPN Pod: Stories from the Marrow

• Essential Thrombocythemia 101 · June 3, 2026 · 34 min
• Catching up with Gary Linehan: Living with PV and his Next Big Adventure · April 8, 2026 · 22 min
• A Young Patient's Journey: Balancing Career and Polycythemia Vera · March 4, 2026 · 25 min
• A 2025 Year in Review for Polycythemia Vera · January 21, 2026 · 26 min
• Managing Your PV and Mental Health · September 24, 2025 · 30 min
• Self Advocacy in Polycythemia Vera: A Patient's Perspective · August 20, 2025 · 25 min