Measuring the Value of Complex Care Programs to Families, With Families

About this episode

Drs. Astrida Kaugars and Jessica Schnell discuss the development and validation of a questionnaire to measure the impact of complex care programs on families.

In this Complex Care Journal Club podcast episode, Drs. Astrida Kaugars and Jessica Schnell discuss a measure development and preliminary validation study of a Complex Care Program Family Impact Questionnaire. They describe the importance of capturing the value of complex care programs, the four domains of program impact that were identified (general satisfaction, caregiver well-being, family well-being, and medical care empowerment), and next steps from this work. SPEAKERS Astrida Kaugars, PhD Professor, Psychology Marquette University Jessica L. Schnell, MD, MPH Associate Professor of Pediatrics, Complex Care Medical College of Wisconsin HOST Emily J. Goodwin, MD Clinical Associate Professor of Pediatrics, University of Missouri, Kansas City School of Medicine Pediatrician, General Academic Pediatrics Beacon Program, Children’s Mercy, Kansas City DATE Initial publication date: March 10, 2026. JOURNAL CLUB ARTICLE Kaugars AS, Bungert N, Lee KJ, Michlig J, Oswald DL, Paul MK, Quates SK, Schnell JL. Capturing caregivers' and families' experiences in a Complex Care Program: development of the Complex Care Program-Family Impact Questionnaire (CCP-FIQ). J Pediatr Psychol. 2025 Nov…

People in this episode

Host: Emily J. Goodwin

Guests: Astrida Kaugars, Jessica L. Schnell

Topics covered

• Complex Care Programs
• Family Impact
• Caregiver Well-being
• Medical Care Empowerment
• Healthcare Research

Keywords

• Complex Care
• Family Impact Questionnaire
• Caregiver Satisfaction
• Healthcare Impact
• Pediatric Care

Mentioned in this episode

Organizations: Marquette University, Complex Care Medical College of Wisconsin, Children’s Mercy, Kansas City

Books & works: Capturing caregivers' and families' experiences in a Complex Care Program: development of the Complex Care Program-Family Impact Questionnaire (CCP-FIQ)

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