BONUS Say More LIVE: Rare Diseases aren’t so Rare.
From Say More by The Boston Globe
February 27, 2026 · 48 min
About this episode
The episode discusses the impact of rare diseases and features insights from medical professionals and families affected by cystic fibrosis.
It’s Rare Disease Week! And the Boston Globe held its second annual Rare Disease Summit, shining a spotlight on the 30 million people living with a rare disease in the US. In this BONUS live recording of Say More, we talk to Boston Children’s Hospital head of pediatrics Dr. Wendy Chung about strides in newborn genetic screening, and Bob and Bobby Coughlin, a father and son whose lives have been transformed by a breakthrough cystic fibrosis drug that’s changing the outlook for people with the disease. Email us at saymore@globe.com. To sign up for the Boston Globe Events newsletter, click here.
People in this episode
Host: The Boston Globe
Guests: Dr. Wendy Chung, Bob Coughlin, Bobby Coughlin
Topics covered
- rare diseases
- genetic screening
- cystic fibrosis
- healthcare
- patient stories
Keywords
- rare diseases
- cystic fibrosis
- genetic screening
- healthcare
- patient advocacy
Mentioned in this episode
Organizations: Boston Children’s Hospital
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