AMT-130 Update: Breaking through the hype
About this episode
This episode exposes the divide between real science and false hope regarding AMT-130, a gene therapy for Huntington's disease.
AMT-130 was sold as the breakthrough Huntington’s families have waited generations for — a one-shot gene therapy that “changes everything.” Researchers celebrated, headlines exploded, and desperate families finally believed they might be saved. But behind the hype, the FDA slammed the brakes, a leading scientist called out exaggerated claims, and truth collided with marketing. This episode exposes the divide: real science vs. false hope. We dig into the hype machine, the backlash, and why Huntington’s families are being pushed into a letter-writing campaign to fix a mess they never deserved. If you’re tired of miracles being promised and ripped away, this is the show you’ve been waiting for.
More episodes of WeHaveAVoice
- Positive Eugenics - Should we worry?
- AMT-130 and the 75% Slowdown: What Just Changed for Huntington’s Disease—and What Hasn’t
- The Blue Within
- Chair By The Window: A Huntington's Disease Story
- Huntington's Isn't Rare...It's Ignored
- The Endless Scroll – Huntington’s Disease in the Age of Doomscrolling
Explore listener stats, chart rankings, contacts and more on the WeHaveAVoice podcast page.