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Recent episodes
Could Huntington's families be forced into institutions? The truth behind the new DOJ memo!
Jun 23, 2026
21m 55s
Positive Eugenics - Should we worry?
Feb 10, 2026
9m 48s
AMT-130 Update: Breaking through the hype
Nov 21, 2025
9m 29s
AMT-130 and the 75% Slowdown: What Just Changed for Huntington’s Disease—and What Hasn’t
Sep 25, 2025
18m 45s
The Blue Within
Aug 23, 2025
8m 05s
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| Date | Episode | Topics | Guests | Brands | Places | Keywords | Sponsor | Length | |
|---|---|---|---|---|---|---|---|---|---|
| 6/23/26 |  Could Huntington's families be forced into institutions? The truth behind the new DOJ memo! | What does the new Justice Dept. memo really mean for people living with Huntington's Disease and their families? We separate fact from fear in this episode. | 21m 55s | ||||||
| 2/10/26 |  Positive Eugenics - Should we worry?✨ | eugenicsgenetic disease+3 | — | — | — | positive eugenicsgenetic disease+3 | — | 9m 48s | |
| 11/21/25 |  AMT-130 Update: Breaking through the hype✨ | gene therapyHuntington's disease+3 | — | AMT-130FDA | — | AMT-130Huntington's disease+5 | — | 9m 29s | |
| 9/25/25 |  AMT-130 and the 75% Slowdown: What Just Changed for Huntington’s Disease—and What Hasn’t✨ | gene therapyHuntington's Disease+3 | — | AMT-130 | — | AMT-130Huntington's Disease+4 | — | 18m 45s | |
| 8/23/25 |  The Blue Within✨ | methylene blueHuntington's disease+4 | — | methylene blue | — | methylene blueHuntington's disease+4 | — | 8m 05s | |
| 8/22/25 |  Chair By The Window: A Huntington's Disease Story✨ | Huntington's Diseaseabandonment+3 | — | — | — | Huntington's Diseaseabandonment+3 | — | 5m 29s | |
| 8/11/25 |  Huntington's Isn't Rare...It's Ignored✨ | Huntington's diseasehealth+3 | — | Huntington's disease | — | Huntington'sdisease+3 | — | 17m 32s | |
| 7/28/25 |  The Endless Scroll – Huntington’s Disease in the Age of Doomscrolling✨ | DoomscrollingHuntington's Disease+3 | — | Huntington's DiseaseThe Endless Scroll | — | DoomscrollingHuntington's Disease+3 | — | 7m 17s | |
| 7/26/25 |  Nicotine Patches & Huntington’s Disease: Is There Hope?✨ | healthdisease treatment+3 | — | nicotine patchesHuntington's Disease | — | nicotine patchesHuntington's Disease+3 | — | 7m 44s | |
| 7/23/25 |  The House That Doesn't Sleep✨ | caregiver burnoutmental health+3 | — | — | — | caregiverburnout+3 | — | 6m 51s | |
Want analysis for the episodes below?Free for Pro Submit a request, we'll have your selected episodes analyzed within an hour. Free, at no cost to you, for Pro users. | |||||||||
| 6/25/25 |  The Kids Who Carry Too Much✨ | child caregiversyouth responsibility+3 | — | WeHaveAVoice | — | child caregiversyouth+3 | — | 9m 46s | |
| 6/17/25 |  44% of Men Die Prematurely | 44% of men die prematurely in Canada. Most likely higher in the US. But what about men with Huntington's Disease? | 8m 04s | ||||||
| 2/2/25 |  HD Research: What's in store for 2025 and beyond according to AI | Kevin uses AI to analyze all information to get a picture of what may happen in regards to HD research in light of possible policy changes due to a new U.S. administration. This is not a political post. | 31m 59s | ||||||
| 2/13/24 |  Rare Disease Day | Host, Kevin Jess, talks about Rare Disease Day which is just around the corner | 12m 32s | ||||||
| 12/21/23 |  New Guidelines to Revolutionize Care for Huntington's Disease Patients | Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD | 13m 05s | ||||||
| 5/23/23 |  Bunny Clark and the 10th Annual Huntington's Heroes Walk | Bunny Clark talks about The Walk for Huntington's Disease May 28th | 13m 38s | ||||||
| 4/21/23 |  Erin Paterson - Huntington's Disease Heroes | No description provided. | 22m 20s | ||||||
| 3/16/23 |  WeHaveAFace! What's next? | Kevin Jess announces charity closings and discusses what's next for WeHaveAFace. | 20m 10s | ||||||
| 9/29/22 | Worthlessness | Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling. | 21m 11s | ||||||
| 7/1/22 |  Coffee Talk with Kevin and Jen (Chat #7) | Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community | 38m 35s | ||||||
| 6/27/22 |  Coffee Talk with Kevin and Jen (Chat #6) | Jen and Kevin talk about hope, testing and other topics | 1h 00m 22s | ||||||
| 6/16/22 |  Coffee Talk with Jen and Kevin (Chat #5) | Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25 | 44m 05s | ||||||
| 6/14/22 |  Kevin speaks about memories and nurturing relationships | Kevin talks about memories of his wife Sheila and how it's important to nurture friendships | 28m 16s | ||||||
| 6/11/22 |  Coffee Talk with Jen and Kevin (Chat 4) | Jen gets an unexpected call and discussion ensues. | 44m 42s | ||||||
| 6/2/22 |  Coffee Talk with Jen and Kevin (Chat #3) | Jen and Kevin chat about disappointments over the years in the Huntington's Disease community | 47m 56s | ||||||
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