#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra

#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra

From #BeyondHAE Youth Produced Podcast by US Hereditary Angioedema Association

February 14, 2025 · 10 min · Season 5 · Episode 6

About this episode

Kaylee and Kiarra share their experiences with hereditary angioedema and discuss their roles in the HAEA Youth Leadership Council.

In this episode of the #BeyondHAE youth-produced podcast, we connect with Kaylee and Kiara, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Both Kaylee and Kiara have been living with HAE and understand the challenges of managing a rare disease. Now, as new members of the HAEA Youth Leadership Council, they are eager to use their voices to empower and support other young people in the HAE community. Tune in for an inspiring conversation about resilience, leadership, and the importance of sharing your story to create meaningful connections. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors, ⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠ and ⁠⁠Pharvaris⁠⁠ .

People in this episode

Guests: Kaylee, Kiarra

Topics covered

Keywords

Sponsors

KalVista, Pharvaris

Mentioned in this episode

Organizations: Hereditary Angioedema Association

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