Inside Many Shades of ALS: An Intimate Roundtable
About this episode
A roundtable discussion with members of Many Shades of ALS addressing the realities of living with ALS and the support needed from others.
Send us Fan Mail Here, I’m joined by six members of Many Shades of ALS, a community team within I AM ALS, for a roundtable that breaks the stereotype of who gets ALS. We talk honestly about “ghosting” after diagnosis and why people disappear even when they care, then get specific about what real support looks like. We also name the moments that sting most: when people speak to our caregivers instead of speaking to us, or when impatience turns a conversation into a dismissal. Many Shad...
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