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On the show
From 10 epsHost
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Recent episodes
Inside Many Shades of ALS: An Intimate Roundtable
May 26, 2026
1h 04m 46s
Erin Taylor and Her Mom Lily on Living Fully with ALS
Apr 21, 2026
53m 52s
Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35
Mar 31, 2026
50m 01s
The Sisterhood She Built: A Tribute to Leah Stavenhagen
Mar 5, 2026
1h 02m 30s
Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Feb 12, 2026
48m 22s
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| Date | Episode | Topics | Guests | Brands | Places | Keywords | Sponsor | Length | |
|---|---|---|---|---|---|---|---|---|---|
| 5/26/26 | ![]() Inside Many Shades of ALS: An Intimate Roundtable✨ | ALSsupport+4 | members of Many Shades of ALS | Many Shades of ALSI AM ALS | — | ALSsupport+5 | — | 1h 04m 46s | |
| 4/21/26 | ![]() Erin Taylor and Her Mom Lily on Living Fully with ALS✨ | ALSadvocacy+4 | Erin Taylor | @unsteadyandready | — | ALSadvocacy+6 | — | 53m 52s | |
| 3/31/26 | ![]() Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35✨ | healthpersonal journey+4 | Sam Cunningham | ALS | — | ALSdiagnosis+4 | — | 50m 01s | |
| 3/5/26 | ![]() The Sisterhood She Built: A Tribute to Leah Stavenhagen✨ | ALSsisterhood+3 | Leah Stavenhagen | — | — | ALSsisterhood+3 | — | 1h 02m 30s | |
| 2/12/26 | ![]() Eric Paslay on “Come Into Our World,” a Song for ALS Awareness✨ | ALS AwarenessSongwriting+3 | Eric Paslay | Hop On A CureHarmony for Hope | — | Eric PaslayALS+5 | — | 48m 22s | |
| 1/27/26 | ![]() Salym Liufau: Finding New Ways to Live with ALS for Her Four Children✨ | ALSmotherhood+4 | Salym Liufau | — | — | ALSmotherhood+5 | — | 50m 10s | |
| 12/10/25 | ![]() Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -2/2✨ | ALSgrief+4 | Melanie Lang | Don’t Waste A Day | — | ALSwidow+6 | — | 37m 28s | |
| 12/8/25 | ![]() Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -1/2✨ | ALSgrief+4 | Melanie Lang | — | — | ALSwidow+6 | — | 48m 52s | |
| 11/11/25 | ![]() Veterans, ALS and the Will to Fight!✨ | veteransALS+5 | Liz FasslerRon Faretra+1 | ArmyAir Force | — | veteransALS+5 | — | 47m 34s | |
| 9/24/25 | ![]() Happy Hour with Her ALS Story and "Hop" of Zac Brown Band✨ | ALScommunity+4 | Tina CascioMira Hudson+2 | Zac Brown BandHer ALS Story | — | ALScommunity+5 | — | 59m 45s | |
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| 8/8/25 | ![]() Supermilk's Jake Popyura: Navigating ALS with Humor & Music | Send us Fan Mail This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Supermilk, who was diagnosed with ALS at just 38. Rather than despair, Jake felt relief—finally understanding the cause behind years of unexplained symptoms. As his physical abilities shift, Jake and his bandmates have chosen adaptation over retreat, pouring their energy into their recent album Lazy Teenage Boasts. Balancing terminal ... | 48m 08s | ||||||
| 7/17/25 | ![]() Life After ALS: A Journey of Healing and Hope | Send us Fan Mail The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their paths through grief toward finding purpose and even joy again. Years after their losses, these women formed "Antiques Roadshow for ALS," a cycling team of women over 60 who donned pearls, vintage clothing, and tutus while raising over $28,000 for ALS TDI'... | 58m 46s | ||||||
| 5/19/25 | ![]() Love, Legacy & Lou Gehrig Day: A Team Effort Against ALS | Send us Fan Mail In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cincinnati Reds — a community who turned their ALS grief into life-changing support for others. From accessible vans to wheelchair ramps to lift chairs and patient care, these local nonprofits are honoring those they've lost to ALS, by providing crucial support to ALS families. Although their capacities so far only allow them... | 59m 53s | ||||||
| 5/6/25 | ![]() Elin Adcock - Her Journey Facing ALS and FTD Together | Send us Fan Mail Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight. When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever. In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinate... | 49m 24s | ||||||
| 4/2/25 | ![]() Questions About ALS? There's an App for That: Roon! | Send us Fan Mail When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father. Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experienc... | 50m 58s | ||||||
| 3/5/25 | ![]() Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action | Send us Fan Mail What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic. We dive into the mental and emotional impact of ... | 49m 53s | ||||||
| 1/28/25 | ![]() I AM ALS Turns 6: Community Teams Inspiring Change | Send us Fan Mail Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients. Why is this so important? Because for far too long, those most impacted by ALS weren’t leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community... | 1h 06m 29s | ||||||
| 1/15/25 | ![]() Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack | Send us Fan Mail Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved h... | 1h 03m 57s | ||||||
| 12/12/24 | ![]() Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey | Send us Fan Mail Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what’s possible with ALS. Johnny’s support network and the lacrosse c... | 54m 36s | ||||||
| 11/25/24 | ![]() "Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS | Send us Fan Mail What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply personal journey, motivated by their father Chris's battle with ALS. Sadly, Chris passed away in early 2024, but these incredible kids, aged just 11 and 8, have turned their grief into action by raising substantial funds for ALS research thro... | 37m 10s | ||||||
| 10/30/24 | ![]() Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND | Send us Fan Mail "LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND experiences fueled the creation of a groundbreaking resource for families worldwide. Hear how the layers of creativity, medical accuracy, and emotional authenticity make this film a vital tool for understanding ALS/MND. Meet my i... | 53m 00s | ||||||
| 10/1/24 | ![]() Episode 100: A Chat with 100-Year-Old Mildred Kirschenbaum | Send us Fan Mail To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an author at 100, Mildred entertains over 100,000 on TikTok and Instagram. Her videos have been featured on mainstream media outlets like the Today Show, CBS and Fox. Mildred and her daghter Gayle collaborated on a book, Mildred’s Mindset: Wi... | 43m 26s | ||||||
| 9/11/24 | ![]() Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS | Send us Fan Mail In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now speaker and advocate. Aaron took a couple years before going public with his ALS in order to discover how he would shape and control his future. As a result, Aaron is currently rebuilding his life to achieve his new impossible ... | 1h 00m 23s | ||||||
| 8/6/24 | ![]() Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music | Send us Fan Mail Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some progression of the disease, Hop is living a full and joyful life. He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research. Hop shares... | 1h 01m 17s | ||||||
| 7/9/24 | ![]() Goode and Faithful Servant: A Chat with Kerry Goode | Send us Fan Mail So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL. So he knew something was wrong when he couldn’t pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds &... | 31m 26s | ||||||
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