The Sisterhood She Built: A Tribute to Leah Stavenhagen

The Sisterhood She Built: A Tribute to Leah Stavenhagen

From I'm Dying to Tell You by Lorri Carey

March 5, 2026 · 1h 3m · Season 6 · Episode 118

About this episode

This episode is a tribute to Leah Stavenhagen, who created a supportive community for young women diagnosed with ALS.

Send us Fan Mail This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her diagnosis. She built something incredible. What began as “In Her ALS Shoes” is now known as Her ALS Story — a sisterhood for women diagnosed with ALS under 35. A place to feel seen & less alone. She also set out to show that ALS ...

People in this episode

Host: Lorri Carey

Guest: Leah Stavenhagen

Topics covered

  • ALS
  • sisterhood
  • personal stories
  • health
  • advocacy

Keywords

  • ALS
  • sisterhood
  • Leah Stavenhagen
  • In Her ALS Shoes
  • Her ALS Story

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