The Sisterhood She Built: A Tribute to Leah Stavenhagen
About this episode
This episode is a tribute to Leah Stavenhagen, who created a supportive community for young women diagnosed with ALS.
Send us Fan Mail This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her diagnosis. She built something incredible. What began as “In Her ALS Shoes” is now known as Her ALS Story — a sisterhood for women diagnosed with ALS under 35. A place to feel seen & less alone. She also set out to show that ALS ...
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