About this episode

Janet Mockovciak shares her struggles with sarcoidosis and her determination to live life fully despite her challenges.

Janet Mockovciak has been through the wringer. Her sarcoidosis has gone from bad to worse. She has tried all the medications that most patients have used, but they only seem to last for a brief period of time. Then they stop. In the meantime, the sarcoidosis spreads throughout her system. Despite that, she manages to walk two miles every day, and recently went skiing with an oxygen tank on her back! Listen as Janet describes all she has been through -- with the takeaway being that she is still working to have the life that she wants and deserves. Show Notes Here is a list of the members of the FSR Global Sarcoidosis Clinic Alliance- Now 50 members strong! https://www.stopsarcoidosis.org/about-fsr-global-sarcoidosis-clinic-alliance/ If individuals living with sarcoidosis or their caregivers would like to join one of our Community Education Groups, they can find a list of active groups at this link: https://www.stopsarcoidosis.org/fsr-gsca-community-groups/ MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in…

People in this episode

Host: John Carlin

Guest: Janet Mockovciak

Topics covered

• sarcoidosis
• health
• patient experience
• chronic illness
• resilience

Keywords

• sarcoidosis
• chronic illness
• patient stories
• health management
• resilience

Mentioned in this episode

Organizations: Foundation for Sarcoidosis Research, FSR Global Sarcoidosis Clinic Alliance

More episodes of Sarc Fighter: Living with Sarcoidosis and other rare diseases

• Episode 163 | New hope for people with kidney and/or skin Sarcoidosos · May 14, 2026 · 28 min
• Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis! · April 6, 2026 · 1h 8m
• Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing · March 23, 2026 · 57 min
• Episode 159 | With Sarcoidosis half the battle is just getting to the doctor · March 9, 2026 · 52 min
• Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis · February 23, 2026 · 1h 8m
• Episode 157 | The Foundation for Sarcoidosis Research rises to the top · February 9, 2026 · 42 min

Explore listener stats, chart rankings, contacts and more on the Sarc Fighter: Living with Sarcoidosis and other rare diseases podcast page.