About this episode

This episode discusses the Foundation for Sarcoidosis Research's efforts in advocating for patients and advancing research in sarcoidosis treatment.

The Foundation for Sarcoidosis Research (FSR) is gaining national traction in the fight against sarcoidosis—championing research funding, patient rights, and access to treatment. In this episode, we dive into how FSR is helping patients receive the care they deserve while empowering the research community to develop new sarcoidosis treatments, therapies, and clinical breakthroughs. We also explore how the Foundation protects and advocates for patients who choose to participate in sarcoidosis clinical trials. From advocacy to innovation, learn how the Foundation for Sarcoidosis Research is shaping the future of sarcoidosis care. Listen in as FSR CEO Mary McGowan shares the news of a big award for the Foundation. Show Notes Watch the Reveal Video for the Voice of the Patient Award: https://22731230.hs-sites.com/rare-disease-week-rva?ecid=ACsprvuh4hPVM-EpuV6h1LCQIIVcgakGq3L3ldFCfwDvvoWpm8_lTO4p5cCXzrvQH09E0wNjpA6q&utm_campaign=2024 Rare Disease Week Obituary Elaine Carlin: https://www.millerplonkafuneralhome.com/obituary/ElaineEPratt-Carlin Here is a list of the members of the FSR Global Sarcoidosis Clinic Alliance- Now 50 members strong…

People in this episode

Host: John Carlin

Guest: Mary McGowan

Topics covered

• sarcoidosis
• patient advocacy
• research funding
• clinical trials
• healthcare access

Keywords

• sarcoidosis
• Foundation for Sarcoidosis Research
• patient rights
• clinical trials
• healthcare

Mentioned in this episode

Organizations: Foundation for Sarcoidosis Research

More episodes of Sarc Fighter: Living with Sarcoidosis and other rare diseases

• Episode 163 | New hope for people with kidney and/or skin Sarcoidosos · May 14, 2026 · 28 min
• Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis! · April 6, 2026 · 1h 8m
• Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing · March 23, 2026 · 57 min
• Episode 159 | With Sarcoidosis half the battle is just getting to the doctor · March 9, 2026 · 52 min
• Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis · February 23, 2026 · 1h 8m
• Episode 156 | Janet Mockovciak has tried everything to get her sarcoidosis under control · January 26, 2026 · 1h 1m

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