Episode 159 | With Sarcoidosis half the battle is just getting to the doctor

About this episode

Royce Robertson discusses the challenges of accessing care for Sarcoidosis and the fundraising efforts to help offset travel costs for patients.

Once you receive a diagnosis of Sarcoidosis, you have an answer. But that raises more questions. What medications should I take? Will they work? Is it the right medication? What complications could I face? Do I have the right doctor, or is the right doctor not in my local area? In many cases sarcoidosis means you need to travel to get the care you need. Your local doctors may not have enough experience to deal with your case. That was the situation for Royce Robertson. He spent tens of thousands of dollars just getting to and from his care. That's before he paid for traditional medical expenses. In this episode of the FSR Sarc Fighter podcast, Royce talks about raising money to help people offset the cost of travel. Show Notes Support Royce: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc How to take the Veterans survey: Log in to your FSR-SARC Patient Registry account. Go to your Dashboard or Surveys/Studies tab. Look for the Military Veterans Survey and click “Start” to begin. Please note – you will need to complete the Baseline Questionnaire before having access to the FSR Military Veterans Survey. https://www.stopsarcoidosis.org/patient-registry/ MORE FROM…

People in this episode

Host: John Carlin

Guest: Royce Robertson

Topics covered

• Sarcoidosis
• medical travel
• healthcare access
• patient support
• fundraising

Keywords

• Sarcoidosis
• healthcare
• travel costs
• patient support
• fundraising
• medical expenses
• doctor access

Mentioned in this episode

Organizations: FSR, FSR-SARC, KISS

More episodes of Sarc Fighter: Living with Sarcoidosis and other rare diseases

• Episode 164 | Why Sarcoidosis gets worse in some people and a bear episode for John · June 2, 2026 · 23 min
• Episode 163 | New hope for people with kidney and/or skin Sarcoidosos · May 14, 2026 · 28 min
• Episode 162 | Veteran Dan Frank talks about service in the Navy and Sarcoidosis · April 27, 2026 · 58 min
• Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis! · April 6, 2026 · 1h 8m
• Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing · March 23, 2026 · 57 min
• Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis · February 23, 2026 · 1h 8m