Redefining Life with Friedreich Ataxia

About this episode

The episode features discussions on the treatment landscape for Friedreich Ataxia and personal experiences of living with the condition.

We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia Program, about the emerging treatment landscape for Friedeich Ataxia as well as Kiersten Riggs, who discusses the events leading to her Friedrich Ataxia diagnosis and how she has adapted to life with Friedrich ataxia.

People in this episode

Guests: David Lynch, MD, PhD, Kiersten Riggs

Topics covered

• Friedreich Ataxia
• neuromuscular diseases
• treatment landscape
• patient adaptation
• personal journey

Keywords

• Friedreich Ataxia
• neuromuscular disease
• David Lynch
• Kiersten Riggs
• treatment
• diagnosis
• patient journey

Mentioned in this episode

Organizations: Children's Hospital of Philadelphia

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