
Young-Onset ALS: Diagnosis and Research
From Amplifying the Patient Journey by Practical Neurology
November 8, 2024 · 20 min
About this episode
Gwen Petersen shares her experience with ALS diagnosis and research, joined by Dr. Merit Cudkowicz discussing clinical trials.
In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.
People in this episode
Guests: Gwen Petersen, Merit Cudkowicz, MD, MSc, Merit Cudkowicz
Topics covered
- ALS
- clinical trials
- neurology
- patient journey
- research
Keywords
- ALS
- diagnosis
- clinical trials
- Cytokinetics
- neurology
- research
- patient journey
Mentioned in this episode
Organizations: Cytokinetics, Massachusetts General Hospital, Sean M. Healey & AMG Center for ALS
More episodes of Amplifying the Patient Journey
- The Power of Movement for Parkinson Disease · May 8, 2026 · 22 min
- Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More · January 30, 2026 · 36 min
- Emma’s Journey: A Mother’s Hope in the Face of Dravet Syndrome · November 13, 2025 · 19 min
- Learning, Laughing, and Living with Multiple Sclerosis · October 21, 2025 · 28 min
- Parkinson Disease Therapy: Lifestyle Interventions to Optimize Care · October 21, 2025 · 25 min
- Redefining the Doctor-Patient Partnership: What a Physician-Patient Can Teach Us About Parkinson Disease Care · October 17, 2025 · 13 min
Explore listener stats, chart rankings, contacts and more on the Amplifying the Patient Journey podcast page.